The ERN / Rare Disease Care Coordinator will provide front-line support for the ERN / rare disease service with a focus on the ERN for Metabolic Diseases (MetaBERN). The post holder will have a central role in coordination of multidisciplinary rare disease care pathways patient and family rare disease support advocacy data collection/analysis and collaboration with the MDT and relevant stakeholders the post holder will contribute to the delivery of a high quality and effective national rare disease service and will identify service quality improvements through a patient partnership approach. The Care Coordinator will collaborate with the National Care Coordinator at the National Rare Diseases Office.
Informal enquires to:
Doreen Steenson Operations Manager - Acute Neurosciences (ANSRM) -
Required Experience:
IC
The ERN / Rare Disease Care Coordinator will provide front-line support for the ERN / rare disease service with a focus on the ERN for Metabolic Diseases (MetaBERN). The post holder will have a central role in coordination of multidisciplinary rare disease care pathways patient and family rare disea...
The ERN / Rare Disease Care Coordinator will provide front-line support for the ERN / rare disease service with a focus on the ERN for Metabolic Diseases (MetaBERN). The post holder will have a central role in coordination of multidisciplinary rare disease care pathways patient and family rare disease support advocacy data collection/analysis and collaboration with the MDT and relevant stakeholders the post holder will contribute to the delivery of a high quality and effective national rare disease service and will identify service quality improvements through a patient partnership approach. The Care Coordinator will collaborate with the National Care Coordinator at the National Rare Diseases Office.
Informal enquires to:
Doreen Steenson Operations Manager - Acute Neurosciences (ANSRM) -
Required Experience:
IC
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