Data Manager
Woolloomooloo - Australia
Job Summary
About us
Cancer Council NSW (CCNSW) is a community funded and focused not for profit. We are the largest cancer charity inNSWand our point of difference is that we work across every area of every cancer from research right through to support.
At CCNSW we understand that nothing feels better than doing work you really care about. As Australias leading organisation supporting all peopleimpactedby all cancers we understand how good it feels to make a difference. We know that almost 1 in 2 Australians are affected by cancer during their lifetime by joining the passionate team at CCNSWyoullknow that each day the workyouredoing will positivelyimpactpeople in your life and Australia.
About the team/About the role:
The Daffodil Centre is a strategic initiative of the Cancer Council NSW (CCNSW) and the University of Sydney underpinned by a formal affiliation and collaboration agreement. As a world-leading population and health services cancer research centre it provides key evidence to influence policy decisions and real-world improvements along the cancer continuum. The Centre combines the complementary strengths of CCNSW and the University of Sydney to create a centre of national and international research excellence where research contributes to a cancer free future.
The Data Manager plays a critical role in supporting The Daffodil Centres expanding precision cancer prevention and molecular research programs by developing and managing the systems that collect integrate store and govern complex research data. Working across epidemiological clinical registry laboratory and genomic datasets the role establishes a unified analysis-ready data environment that enables high-quality research and evidence generation. Reporting to the Head of Research Translation the position collaborates closely with bioinformatics laboratory ethics and research teams to ensure effective data management governance and operational integration while supporting the establishment of a new PC2-certified molecular research laboratory.
About the benefits:
- Generous salary packaging options that can increase your take home pay by paying certain expenses using pre-tax dollars up to $15900 a year.
- Recognised for Voice Projects 2021 and 2023 Best Workplace Awardas well asXrefBest Workplace in 2025.
- Additionalperformance-based leaveavailable.
- Work for purpose and know that your work fosters an engageddiverseand culturally aware organisation.
- Discounts available for everyday expenses such as private healthretailand fitness
Key responsibilities of the role:
- Lead the development and management of the Centres research data platform integrating harmonising and securely storing epidemiological clinical registry laboratory and genomic data.
- Manage major cohort registry and linked datasets including data extraction linkage secure access longitudinal follow-up and integration with external data sources such as cancer and death registries.
- Design and oversee data capture systems for clinical and epidemiological studies ensuring data quality consistency completeness and effective study setup through robust data frameworks and workflows.
- Coordinate laboratory and molecular data integration connecting LIMS sequencing and other laboratory outputs into harmonised research-ready datasets in collaboration with bioinformatics and laboratory teams.
- Ensure data governance compliance and security including consent management quality assurance metadata documentation controlled access privacy compliance and audit processes.
- Provide researcher support and enable collaboration by delivering analysis-ready datasets advising on data management strategies and facilitating secure national and international research partnerships.
About you:
Essential:
- Relevant qualifications and research data expertise with experience managing data across the full research lifecycle including collection harmonisation linkage quality assurance documentation and controlled data release.
- Data platform and systems management experience including building or maintaining data warehouses common data models and integrating data from multiple complex sources.
- Technical proficiency in research data management tools including electronic data capture systems (e.g. REDCap) and programming languages such as SQL R and/or Python for data transformation linkage and quality control.
- Strong knowledge of data governance and compliance including consent management ethics privacy legislation de-identification and secure access frameworks for sensitive research data.
- Excellent analytical communication and stakeholder engagement skills with the ability to solve complex problems work autonomously produce high-quality documentation and collaborate effectively with researchers and non-technical stakeholders.
Desirable:
- Experience managing large-scale research data environments including cohort studies linked datasets registries longitudinal data collection and secure research platforms.
- Technical expertise in laboratory and molecular data systems with experience integrating LIMS managing genomic and sequencing datasets and supporting complex data infrastructure requirements.
- Strong research and data governance capability including cancer or precision prevention research Australian data linkage frameworks SOP and data strategy development and collaboration across multi-site research partnerships.
CCNSW is an inclusive place to volunteer and work. We embrace diversity celebrate our differences and inspire each person to be their authentic self at work. As we strive torepresentthe communities we serve we welcome and actively encourage applications from Aboriginal and Torres Strait Islander people and other diverse groups.
If you require any adjustments tosubmityour application pleaseget in touch withBlayze Thomas
Apply online by visiting our website directly copying the following click on therole title andsubmityour cover letter and resume.
Closing date: 4th September 2026
Required Experience:
Manager