TK2D Patient Journey Lead Brazil

At UCB we put our heart dedication and capabilities into making a difference in the lives of people living with severe diseases. By working together to push boundaries we combine the best of our talents to drive innovation and deliver meaningful impact for patients. Do you want to be part of this pioneering journey

To strengthen our team we are looking for a Patient Journey Lead TK2d Brazil.

Key Responsibilities:

• Drive patient identification initiatives by partnering with healthcare stakeholders including neurologists geneticists nurses pharmacists and other specialists at Centers of Excellence (CoE).

• Execute disease awareness and educational initiatives developed by global teams helping to improve understanding and recognition of TK2 deficiency across the healthcare ecosystem.

• Support referral pathways by connecting healthcare organizations with specialized Centers of Excellence and facilitating collaboration among stakeholders involved in diagnosis and treatment.

• Collaborate with healthcare professionals and internal stakeholders on screening initiatives and advocate for the inclusion of TK2d in neuromuscular genetic testing panels.

• Engage with patient organizations to strengthen awareness education and community support initiatives for individuals living with TK2 deficiency.

• Map and analyze patient journeys to identify key barriers unmet needs and opportunities to improve diagnosis treatment access and patient care.

• Act as a local point of contact to support the implementation of approved access programs and help healthcare providers navigate the healthcare ecosystem to secure funding and treatment for individual patients.

• Support the transition of patients from clinical trials or early access programs into standard treatment pathways ensuring continuity of care.

• Promote the appropriate and safe use of therapy by ensuring healthcare professionals and payors understand the scientific background treatment value and patient management requirements.

• Provide guidance to healthcare professionals so they can effectively educate patients and caregivers on treatment use and long-term management.

Requirements:

• Bachelors degree in Life Sciences Healthcare Business or a related field.

• Strong experience in biotechnology or pharmaceutical industries with external engagement roles such as Medical Affairs Market Access or similar functions.

• Experience collaborating with academic centers and hospital systems preferably within complex care environments.

• Experience in Rare Diseases will be considered a plus.

• High scientific acumen and strong project management skills.

• Fluent English and local language required.

• Willingness to travel up to 70% with approximately 7080% field-based activities.

• UCB and its subsidiaries encourage diversity and inclusion in the workplace and are equal opportunity employers.

UCB and its subsidiaries encourage diversity and inclusion in the workplace and are equal opportunity employers.