Patient Education Liaison
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Job Location:
San Francisco, CA - USA
Yearly Salary:
$ 160800 - 201000
Posted on:
9 hours ago
Vacancies:
1 Vacancy
Job Summary
Why Sarepta Why Now
The promise of genetic medicine has arrived and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle central nervous system and cardiac 2023 we launched our fourth therapy and the first ever gene therapy to treat Duchenne.
Were looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.
What Sarepta Offers
At Sarepta we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas:
Physical and Emotional Wellness
Financial Wellness
Support for Caregivers
For a full list of our comprehensive benefits see our website: Importance of the Role
Reporting to the Executive Director Patient Engagement Liaisons the Patient Engagement Liaison (PEL) will serve as the primary point of contact for families during the treatment discovery phase for Elevidys providing clear compassionate education to support informed treatment discussions with their care team. As a PEL your role involves supporting patients and caregivers interested in learning about a treatment option for Duchenne Muscular Dystrophy (DMD). This field-based position provides educational assistance to patients and caregivers considering or undergoing therapy. Key responsibilities include supporting the Duchenne community at events collaborating with patients families and serving as a trusted educational resource for patients and caregivers during the treatment consideration phase. This role is dedicated to providing an educational forum for families to learn more about Elevidys helping them understand the therapy available educational resources and the broader support ecosystem. The PEL acts as a bridge between the patient community and Sarepta ensuring families receive accurate compassionate and timely information to support informed decision-making. As a PEL you will work with various internal teams to meet local territory needs.The Opportunity to Make a Difference
- Provide education and ongoing support to patients caregivers and the DMD community including Elevidys product information dosing and administration and other needed education
- Connect patients and caregivers to relevant support programs advocacy and community organizations
- Help families navigate available options and understand next steps in their pre-treatment journey
- Be accessible to address the questions of Caregivers and Patients
- Create awareness and educate through local advocacy and programming including coordinating patient programs and education at conferences
- Respond promptly to patient and caregiver questions and concerns providing resources to resolve issues while ensuring compliance with HIPAA and patient privacy policies
- Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs
More about You
- Bachelors degree plus 10 years of experience in healthcare life sciences social work public health or a related field
- 3 years of field-based experience in patient advocacy patient support healthcare education or a related role
- Experience directly supporting patients is required
- Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
- Strong communication skills including public speaking and presentation experience
- Ability to explain complex information clearly and compassionately
- Demonstrated ability to effectively collaborate with case managers and account managers handle difficult patient cases and respond promptly to patients
- Overnight travel may be required. This position requires significant driving of either a company-provided or personal vehicle as well as prolonged periods of sitting both of which are part of the essential duties and responsibilities of the role. This position will require approximately 20-50% travel including some overnights and weekends.
Preferred
- Experience in neuromuscular diseases rare diseases or gene therapy
- Bi-lingual English/Spanish preferred
- Experience working with patient advocacy organizations
What Now
Were always looking for solution-oriented critical thinkers.
So if youre comfortable with ambiguity and candor relish challenging yourself and place kindness and integrity at the forefront of how you approach your peers and work then we encourage you to apply.
Key Skills
- Presentation Skills
- Time Management
- Clinical Research
- Communication skills
- GCP
- Infusion Experience
- Managed Care
- Hospice Care
- Conflict Management
- Clinical Trials
- Research Experience
- Home Care
About Company
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
