Director, Federal Affairs

Why Sarepta Why Now

The promise of genetic medicine has arrived and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle central nervous system and cardiac 2023 we launched our fourth therapy and the first ever gene therapy to treat Duchenne.

Were looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

What Sarepta Offers

At Sarepta we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas:

• Physical and Emotional Wellness

• Financial Wellness

• Support for Caregivers
  

For a full list of our comprehensive benefits see our website: Importance of the Role

The Opportunity to Make a Difference

• Serve as a registered federal lobbyist and engages federal elected officials and their staff.
• Develop and drive implementation of Sareptas government affairs engagement plan to shape a positive policy environment for achieving Sareptas goals as well as those to mitigate or prevent negative impacts
• Monitor and assess the political climate related to rare disease and gene therapy policies to determine effects on the industry and Sareptas near- and long-term goals
• Represent the Companys interests through active participation on various trade association committees and coalitions.
• Develop and maintain a network of contacts at the Federal legislative level and among other public opinion leaders to ensure Sareptas interests are reflected in important legislative environments taking meetings independently as appropriate
• Collaborate and coordinate across Sarepta and with its federal consultants in the development and execution of strategies and related activities
• Draft memos educational materials and presentations detailing the impact of federal legislation and policy on the companys business as well as the Federal Government Affairs strategy
• Educate internal stakeholders on federal legislative and administrative policy proposals that could impact Sarepta
• Manage federal political action committee including development of solicitation donation and employee engagement strategies
• Ensure Sarepta is compliant with lobbying disclosure rules
• Required knowledge of a variety of issues will be necessary within scope of responsibility and may include but are not limited to Medicaid federal appropriations PDUFA 21st Century Cures newborn screening pharmaceutical reimbursement 340B Program policy corporate tax and other healthcare or corporate issues that impact the pharmaceutical industry

More about You

• Minimum of 10 years current and relevant experience in federal government affairs/policy

• Bachelors degree required in science political science government or public policy

• Experience dealing with federal healthcare legislative regulatory policy and political issues

• Direct lobbying experience required

• Demonstrated ability to build and sustain relationships with members and their staff of the legislature administration and other government and non-government policy leaders

• Knowledge of the federal governments legislative and regulatory systems

• Innovative thinker strong communication (written and verbal) and presentation skills

• A high level of energy and passion toward patients science and good policy

• Proven teamwork and collaboration skills with a demonstrated ability to work collaboratively with colleagues industry trade associations and influential policy organizations

• Attention to detail and an ability to recognize issues in the context of higher-level policies and regulations

• Self-initiating well-organized and capable of managing multiple projects simultaneously and independently

What Now

Were always looking for solution-oriented critical thinkers.

So if youre comfortable with ambiguity and candor relish challenging yourself and place kindness and integrity at the forefront of how you approach your peers and work then we encourage you to apply.