Associate Director, Health Policy & Advocacy
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Job Location:
Alexandria - USA
Monthly Salary:
Not Disclosed
Posted on:
23-08-2025
Vacancies:
1 Vacancy
Job Summary
National Psoriasis Foundation
Job Description
Title: Associate Director Health Policy & Advocacy Date: August 2025
Department: Advocacy & Govt Relations Status: Exempt
Reports to: Vice President of Government Relations & Advocacy
Position Summary:
The Associate Director Health Policy & Advocacy leads the organizations state and federal health policy work to improve access to care reduce utilization management barriers and advance outcomes for people living with psoriasis and psoriatic arthritis. This role combines policy analysis strategic advocacy and stakeholder engagement with a focus on health economics and patient-centered evidence to drive systemic change.
Core Responsibilities
1. Policy Analysis & Development
- Monitor and analyze legislative and regulatory activity related to psoriasis care including but not limited to utilization management practices (e.g. step therapy prior authorization non-medical switching) prescription drug access formulary transparency and provider reimbursement.
- Develop policy positions and legislative recommendations that reflect patient needs clinical best practices and real-world treatment barriers.
- Integrate health economics and outcomes research (HEOR) into advocacy messagingdemonstrating the burden of disease cost of delayed treatment and value of timely continuous care for psoriasis patients.
- Prepare and update issue briefs comment letters testimony and policy one-pagers grounded in both policy evidence and lived experience.
2. Advocacy & Government Relations
- Build and manage relationships with state and federal lawmakers regulatory agencies (e.g. CMS HHS) and policymakers to advocate for access to appropriate treatments for psoriasis.
- Support legislative campaigns and regulatory initiatives that address harmful utilization management practices.
- Represent the organization in coalitions (e.g. National Health Council All Copays Count Coalition Safe Step Ad Hoc Coalition Partnership to Protect Coverage Coalition of Skin Diseases) to align psoriasis priorities with broader patient access efforts.
- Lead or assist with Hill Days advocacy training for patients and direct lobbying efforts.
3. Health Economics & Access Strategy
- Work with internal and external experts to translate HEOR findings (e.g. burden of disease quality-of-life data cost-effectiveness models) into policy-relevant messaging.
- Analyze payer trends including formulary coverage and UM policies across public and private plans (Medicaid Medicare Part D commercial).
- Support the organizations efforts to engage payers and PBMs around access barriers and value-based care models.
4. Stakeholder Engagement
- Partner with patients clinicians (e.g. dermatologists rheumatologists) and researchers to elevate real-world treatment access issues.
- Facilitate engagement with advisory committees patient advocates and coalition partners to inform and co-develop advocacy strategies.
- Collect and amplify patient stories that reflect policy barrierse.g. treatment delays due to prior authorization or step therapy failures.
5. Communications & Public Education
- Collaborate with the communications team to develop advocacy messaging and public-facing materials that make policy issues understandable and compelling.
- Contribute to newsletters action alerts blogs op-eds and social media content related to utilization management access and HEOR findings.
- Deliver policy updates and briefings to internal teams board members and external stakeholders.
6. Organizational Strategy & Reporting
- Help define the organizations annual policy priorities in alignment with strategic goals and evolving federal/state landscapes.
- Track and report on key performance indicators related to policy wins stakeholder engagement and patient impact.
- Support advocacy-related grant applications and reporting particularly those focused on access and affordability.
Qualifications
- Bachelors or Masters degree in Public Policy Public Health Health Economics or a related field.
- 37 years experience in health policy government relations or advocacy (nonprofit or healthcare setting preferred).
- Deep understanding of utilization management policies and payer trends.
- Familiarity with HEOR principles and ability to translate technical data into policy messaging.
- Excellent communication relationship-building and strategic planning skills.
- Passion for improving the lives of people living with psoriasis and other chronic or immune-mediated conditions.
Required Experience:
Director
Key Skills
- Program assessment
- FDA Regulations
- Manufacturing & Controls
- Program Evaluation
- budget forecast
- Research Experience
- Operations Management
- Research & Development
- Strategic Planning
- Contract Management
- Leadership Experience
- negotiation
About Company
The National Psoriasis Foundation is here to help you get the treatment you need while promoting research to find a cure for psoriasis and psoriatic arthritis.
