Patient Advocacy Specialist

Department:

Location:

Be a part of a global team that is inspired to make a difference in the lives of people living with rare disease.

At Travere Therapeutics we recognize that our exceptional employees are vital to our success. We are a dedicated team focused on meeting the unique needs of rare patients.Our work is rewarding both professionally and personally because we are making a difference. We are passionate about what we do.

We are seeking talented individuals who will thrive in our collaborative diverse fastpaced environment and share in our mission to identify develop and deliver lifechanging therapies to people living with rare disease. We stick by our values centered on patients courage community and collaboration to pursue our vision of becoming a leading biopharmaceutical company dedicated to the delivery of innovation and hope to patients in the global rare disease community.

At Travere Therapeutics we are in rare for life. We continue to courageously forge new paths as we move toward a common goal of elevating science and service for rare patients.

Position Summary:
The Specialist Patient Advocacy reports to the Executive Director Patient Advocacy within the Public Affairs function and plays a critical role in supporting the companys patient advocacy operational success external partnerships and program support. This role is responsible for providing strategic project management stakeholder engagement and operational leadership across Patient Advocacy. Additionally this position will provide key support for the Rare Kidney Disease (RKD) and Classical Homocystinuria (HCU) programs ensuring strong cross functional engagement with colleagues and advocacy groups to advance the companys commitment to addressing unmet needs in rare diseases.

Responsibilities:

Operational Leadership
Provide projectbased support to the Advocacy Team assisting with:
o Contract management invoicing and process flow with external parties
o Followups and program closeouts for Advisory Board Meetings ensuring compliance with internal processes and external regulatory requirements
o Tracking and reporting on advocacy budgets grants and program expenditures to support annual planning and financial oversight
Coordinate the charitable grants process for patient advocacy ensuring compliance with internal policies and external regulations.
o Day to day oversight of the Advocacy Grants portal Cybergrants
o Preparation of meeting documents post meeting approvals and timely grant fulfillment.
Ensure all advocacy initiatives are aligned with regulatory guidelines and industry best practices.

Strategic Project & Event Management
Oversee the planning and of virtual and inperson advocacy events including:
o Advisory boards
o Roundtable discussions
o RDPAC Meetings
o Task force meetings
o Conferences exhibition booths and networking events
Lead agenda development contract management and honorarium processing for key advocacy initiatives.
Provide onsite support at select advocacy events to ensure seamless and stakeholder engagement.
Support the Rare Disease Patient Advisory Council fostering patient insights and partnerships to enhance company initiatives.

Communications & Process Improvement
Assist with drafting and refining presentations policies and procedures to enhance the impact of advocacy initiatives.
Identify and implement process improvements to drive efficiency across Patient Advocacy.
Support the development of educational materials briefings and strategic reports for senior leadership and key stakeholders

Advocacy & Stakeholder Engagement
Support the HCU and RKD Patient Advocacy leads with strategic initiatives patient community engagement and advocacyrelated projects.
Provide research content development and project management support for special initiatives policy engagement and advocacydriven programs.

Education/Experience Requirements:

Bachelors degree in related Life Sciences discipline. Equivalent combination of education and applicable job experience may be considered.
2 years of experience in an administrative or operational role experience working in pharma biotech healthcare or a related field is preferred.

Additional Skills/Experience/Requirements:

The ideal candidate will embody Traveres core values: Courage Community Spirit Patient Focus and Teamwork.
Exceptional project management organizational and communication skills with the ability to navigate multiple priorities in a fastpaced setting.
Experience managing grants contracts and budgetrelated processes in a regulated environment.
Experience with Cybergrants platform is a plus.
Meeting event and conference planning background requiring attention to detail and proactive communication skills including engagement with key opinion leaders.
Familiarity with patient advocacy rare disease and healthcare policy.
Ability to build and maintain relationships with patient advocacy groups healthcare professionals and internal stakeholders.
Ability to travel 15 domestically
All positions have an essential job function to be able to perform face to face work with colleagues and/or onsite in San Diego. No role is expected to be 100 remote.

Travere is an EEO/AA/Veteran/Disability Employer

#hybrid

Total Rewards Offerings:
Travere provides comprehensive total rewards offerings that demonstrate our commitment as a diverse equitable peoplecentric and payforperformance organization.

Benefits: Our benefits include premium health financial worklife and wellbeing offerings for eligible employees and dependents wellness and employee support programs life insurance disability retirement plans with employer match and generous paid time off.

Compensation: Our competitive compensation package includes a combination of both cash compensation (base pay and shortterm incentive) and longterm incentive compensation (company stock) designed to recognize retain and reward employees.

Target Base Pay Range:

*This information is current as of the date of this posting and may be modified in the future. Actual pay offered to a candidate will depend on a variety of factors including the candidates experience education skills and location.

Travere will accept applications on an ongoing basis until a candidate is selected for the position.

Travere Therapeutics Inc. is an EEO/AA/Veteran/Disability Employer.

If you require a reasonable accommodation to complete the application or interview process please contact us by sending an email to . Please note that this email address is to be used exclusively to request an accommodation with the online application interview or hiring process only. Travere HR will not reply to emails sent to this address for any other reason.