Registry Program Manager
Job Summary
Registry Program Manager
POSITION: FULL-TIME TERM (1 YEAR TERM WITH POSSIBILITY OF EXTENSION)
REPORTS TO: DIRECTOR RESEARCH & BEST PRACTICE IMPLEMENTATION
DEPARTMENT: RESEARCH & CARE
Praxis Spinal Cord Institute is a Canadian-based not-for-profit organization that leads global collaboration in spinal cord injury research innovation and care. We advance ground-breaking ideas that can be put into practice making lives better. We actively engage people with spinal cord injury and other world-class experts to work together to identify and solve the most urgent challenges to make exceptional improvements in the health of people with spinal cord injury. Praxis is proudly accredited by Imagine Canada and was named one of Canadas Top 100 Charities by Macleans and Money Sense magazines achieving an A rating.
Through a diverse workforce Praxis is committed to excellence in research innovation and care for people living with spinal cord injury. Praxis recognizes that a diverse workforce comprised of individuals with an array of identities abilities backgrounds cultures skills perspectives and experiences is vital to creativity growth and innovation and our success in making an impact on quality of life. We support our commitment by fostering an inclusive workplace which is fair equitable supportive welcoming and respectful allowing us to continue to transform health outcomes.
JOB SUMMARY
The Registry Program Manager leads the operations of the Canadian National SCI Registry also known as the Rick Hansen SCI Registry (RHSCIR) and identifies opportunities to align RHSCIRs strategic direction with the priorities of Praxis Programs (Research & Care Innovation) to achieve Praxis Vision and Mission. This role supports participating acute care hospitals and rehabilitation sites (along with community partners) with network activities and with data collection coordinates best practice implementation activities clinical study operations and works closely with clinicians researchers people with lived experience administrators and Praxis teams to strengthen SCI research care and innovation across Canada.
The Registry Program Manager internally works with members of Praxis Research & Care Informatics Innovation and Evaluation and Accountability teams. Externally works across a national network of acute care hospitals and rehabilitation sites along with community partners clinicians researchers site coordinators people with lived experience and community organizations.
JOB ACCOUNTABILITIES
Key Responsibilities
- Lead RHSCIR planning and operations oversee data collection and reporting facilitate site engagement and support the implementation of best practices at participating acute care hospitals and rehabilitation sites across Canada (including oversight of regulatory and institutional approvals).
- Coordinate strategic and program plans priorities timelines risks deliverables and sustainability planning for RHSCIR operations and improvement initiatives.
- Support high-quality data collection reporting and continuous improvement in collaboration with site teams and internal partners.
- Foster engagement and build strong relationships with clinicians researchers coordinators people with lived experience administrators and community partners to support collaboration and best practice implementation.
- Prepare updates materials and communications for RHSCIR sites relevant committees (e.g. RHSCIR Steering Committee) Praxis team members and external partners.
- Lead budget planning resource tracking and contracted activities for RHSCIR.
- Manage related contracts contractors consultants and staff including meeting regularly and tracking deliverables.
- Support the RHSCIR Steering Committee oversee RHSCIR-related policies and procedures such as maintaining study documentation data quality training along with the RHSCIR team.
QUALIFICATIONS
Education
- Masters degree in health sciences public health health administration research or a related field preferred.
- Clinical research training (e.g. Good Clinical Practice human subject research etc.)
- Program/project management education is an asset.
- An equivalent combination of education and experience will be considered.
Experience
- 5 years of experience in program management health research clinical study operations health system improvement or a related field.
- Experience coordinating multi-partner initiatives in healthcare research or the not-for-profit sector.
- Experience with data-driven programs clinical registries clinical studies or quality improvement is an asset.
- Knowledge of spinal cord injury care rehabilitation clinical and/or research environments is an asset.
- Experience managing contract relationships and staff.
Skills/Behaviours
- Strong understanding of clinical study oversight and management.
- Strong program and project management organizational and communication skills.
- Ability to manage multiple priorities and work effectively across distributed teams and partners.
- Strong analytical problem-solving and relationship-building skills.
- Ability to build relationships and networks through engagement and ongoing learning.
- Commitment to professionalism inclusion and respectful engagement.
An equivalent combination of education experience and skills/behaviors will be considered.
HOW TO APPLY
Interested and qualified candidates can apply by August 14 2026. While we thank all applicants for their interest only short-listed candidates will be contacted. For more information on Praxis please visit .
Praxis Spinal Cord Institute would like to acknowledge that the land on which we are located is on the unceded traditional territory of the Coast Salish Peoples specifically the shared traditional territories of the Sḵwxwú7mesh (Squamish) səlililwətaʔɬ (Tsleil-Waututh) and xʷməθkʷəyəm (Musqueam) First Nation
Required Experience:
Senior IC
About Company
Praxis is a Canadian-based not-for-profit organization that leads global collaboration in spinal cord injury research, innovation and care.