Newborn Screening Program Short Term Follow Up Case Manager

This position is housed in the Stead Family Department of Pediatrics in the Division of Medical Genetics and Genomics. This staff member will perform case managementand followupdutiesfortheIowaNewbornScreeningProgram(INSP)and affiliated state newborn screening include clinical educational administrative liaison and research activities as well as data entry and tracking.

Position Responsibilities:

Perform case management activities for Iowa South Dakota Alaska and other state newborn screening programs as needed which include:telephone fax or email notification to primary care providers birthing facilities specialists health care workers and/or parents for abnormal newborn screening results; communicate recommendations in accord with established protocols; assist primary care providers facilities and parents/guardians in obtaining a repeat screen and/or confirmatorytesting;informmedicalconsultantsoftheresultsoftheconfirmatorytesting to assess next steps; assist with the referral process to specialists; work with the programs medical consultants to ascertain an outcome for cases.

Document information and outcomes in multiple data entry into databases (state national and potentially disorder-specific). Gather collate and review data as assigned. Workwithprogramstafftointerpretdataandmakedecisionsinaccordwithestablishedprotocols.

Attend and participate in meetings as assigned. These meetings could include staff meetings case closure meetings disorder specific meetings state newborn screening advisory committee meetings could also include attendance at state is required.

Participateinthedevelopmentandreviewofprotocolsandotherdocuments.

Assistwiththedevelopmentandimplementationofeducationalprogramsfornewborn screening stakeholders.

will require travel to provide face-to-face education when necessary (within Iowa or states with which the newborn screening program contracts for services).

Participateinqualityimprovementprojectsasassigned.

AssistProgramManagerwithdevelopmentandimplementationofscreeningfornew disorders added to the newborn screening program as assigned.

Assistwithand/orprepareandpresentnewbornscreeningrelatedclinicalandresearch projects such as abstracts posters journal articles or presentations.

Maintainskillsandcompetenciesrelatedtocasemanagementandshort-termfollowupduties.

Communicate expectations and provide support and resources that are in alignment with thevisionand trategicplanningoftheUniversitytofostercreativityandinnovationintheworkplace.

Provideweekendcallonweekendsandholidaysasassigned.(1in5 depending on staffing)

AssistProgramManagerwithadministrativetasksincludingusingMSWordExceletc.

Maintainpatient rightsand confidentialityand serveasapatientadvocate.

PerformotherdutiesasassignedbyProgramManagerorMedicalDirector(special projects or assignments).

About the Stead Family Department of Pediatrics

The Stead Family Department of Pediatrics is a national leader in pediatric medicine. The Departments mission is to provide outstanding care to the children of Iowa and beyond by being a leader in state-of-the-art clinical care to children performing cutting-edge research to find new treatments and cures for childhood illnesses and educating the next generation of pediatric health care providers. The Department comprises the medical and research staff of UI Stead Family Childrens Hospital. UI Stead Family Childrens Hospital is one of the nations top-ranked pediatric care and research institutions and Iowas only comprehensive childrens hospital.

About the Division of Medical Genetics and Genomics

The Division of Medical Genetics and Genomics is committed to excellence in providing comprehensive services for children adults and prenatal patients in the diagnosis treatment and management of genetic conditions. The Divisions multidisciplinary team is comprised of board-certified medical geneticists clinical biochemical geneticists molecular genetic pathologists nurse practitioners physician assistants genetic counselors nurses and dietitians. Our medical genetics team collaborates with state and federal agencies educators researchers support groups and others to provide the latest information and treatment options for patients and their families.