Staff Nurse Pediatric PulmCF

Within the Stead Family Department of Pediatrics Division of Pulmonary Medicine this position evaluates center outcomes addresses quality improvement initiatives and examines dynamic health care issues including nutritional status infection control and pulmonary treatment and/or metabolic issues rapidly and effectively for cystic fibrosis (CF) patients. Responsibilities would also include data entry to keep the Patient Registry current and accurate.

Duties to include:

Compliance with Internal Policies and External Regulations for Safe and Effective Care Delivery and Health Profession Education

CF Patient Registry PORTCF

Assist the primary investigator (PI)/Center director in overseeing mechanisms to ensure accurate data entry into CF Patient Registry

Review CF Patient Registry data entry fields to understand information to be collected and work with hospital systems to ensure data collection

May oversee and/or perform data entry depending on staffing and resources

Assist in obtaining Registry consents for patients new to the center

Complete and follow institution and IRB training requirements to participate in research

Generate center or patient specific reports and teaching others to generate reports using report writer tool

Assist in obtaining uploading and submission of Annual Surveys

Specialized Services for Nursing Care

Newborn Screening for CF

Oversee newborn screenings processes performed at the local CF Center as applicable.

Communicate with state newborn screening staff and establish processes specific to CF newborn screening

Evaluate all abnormal newborn screenings referred to the CF Center

Ensure that all positive cystic fibrosis tests are identified and followed appropriately by the CF Center team

Assist in arranging sweat chloride testing for infants with abnormal screens

Coordinate with core nursing and scheduling to update clinic templates as needed to accommodate add-on visits for infants with abnormal newborn screen

Provide newborn screening support and education to families

Assist with ambiguous or CRMS cases

Sweat test and Standards

Assist physicians with evaluation and follow-up on sweat testing done at the local CF Center

Arrange appointments as needed for testing and/or clinic appointments

Provide support and education information to parents/patients

DNA Mutation Analysis Results

Ensure that appropriate test forms for genetic testing are available

Assist in arranging for DNA testing

Assist physicians with evaluation and follow-up

Provide support and education as needed to patients/parents

Provide Education

Responsible for the oversight of CF education and the promotion of CF awareness within the center and community.

Serve as a resource for current evidence-based information and best practices regarding CF and CF Care

Familiar and comfortable with accessing education materials and information found on MyCFF

Maintain a library of the various CF educational materials provided by the CFF and by various pharmaceutical companies

Provide patient/family education in-service lectures for staff to include medical professionals ancillary staff and community organizations involved in care of the CF patient population in the community and center

Develop lectures and/or other forums for education of persons who will be involved in care of the CF patient e.g. teachers daycare providers college medical personnel etc.

Educate staff patients and families on CF practice guidelines and statements

Provide education to patients and their families on CF CF Care and assist with facilitating self management of their disease

Organize education opportunities for specific team members e.g. airway clearance techniques by a respiratory therapist feeding behavior issues with a dietician etc.

Provide Support for Specialized Services or Populations

Outpatient

Respond to patient/family messages or phone calls forward information to necessary parties if needed to determine the appropriate response

Oversee and coordinate care provided at the CF Outpatient Clinic

Work with CF Team members to assure that all CF Foundation Guidelines for Outpatient Care are followed

Utilize PORTCF or SmartReports for clinical trends

Assure patients are seen at appropriate intervals per CFF recommendations

Work with CF team to ensure CF patients are reviewed at least annually for CF practice guidelines

Hold regular team meetings to review individual patient care and appropriate treatments per center criteria

Serve as a liaison between the CF Team and the outpatient clinic staff

Implement and monitor infection control practices

Assist with development of telephone triage process to ensure calls returned by appropriate staff in a timely manner (sick calls refills equipment issues lab results etc)

For a full job description please email