Duchenne Nurse Educator (Specialty)

The Opportunity to Make a Difference

• The bilingual (English/Spanish) speaking DNE will educate providers infusion nurses patients and caregivers on Sareptas approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (Genotype deletions disease process etc.)
• Stay current on the DMD environment.
• Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCPs patients and families.
• Present to audiences compliantly.
• Conduct Programs for disease state awareness.
• Assist to improve infusion experience for DMD patientsby providing ongoing support to the infusion nurses and sharing best practices.
• Work with SareptAssistteam and specialty pharmacy to ensure smooth transition frominfusioncenterto home infusion for PMO therapies.
• Support to patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings medical offices and home health agencies as necessary.
• Other related duties as required.
• Special projects including triage nursing support:
• Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts.
• Intake and interpret different nuances of medical information to triage calls appropriately.
• Communicates and acts as a liaison between patients care teams and an experienced physician in a confidential manner.
• Documents calls according to established guidelines (PV reporting).
• Directs the patient care team to the proper Customer Service Center (e.g. Medical information SareptAssist) based on the topic of the call. Requires on call coverage to provide day night and weekend coverage.

More about You

• Registered Nurse with a bachelors degree (BSN/BS/BA) from an accredited school.
• At least 5 years of relevant experience; Infusion Neuromuscular Pediatric Neurology or other specialty experience preferred.
• Bilingual (English/Spanish) required. Ability to communicate effectively in both English and Spanish supports our efforts to better serve a diverse customer/client/community base.
• Prefer 2 or more years experience in the pharmaceutical/biotech industry.
• Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
• Exceptional presentation verbal and written communication skills
• Demonstrates team-based skills collaborating with cross functional partners both internally and externally.
• Competent and comfortable presenting in group and individual settings live and virtually with and without technology.
• Empathetic friendly and relatable with effective communication skills.
• Comfortable speaking with patients/families.
• Willingness to work as part of a team in a demanding environment.
• Embraces continuous learning/seeks knowledge.
• Valid drivers license and in good standing.
• Requires rotating on call coverage 24 hours/7 days per week.
• Ability to travel including ground and air transportation up to 60% within assigned territory is required. Must be able to travel to meetings training and other programs as necessary.

What Now

Were always looking for solution-oriented critical thinkers.

So if youre comfortable with ambiguity and candor relish challenging yourself and place kindness and integrity at the forefront of how you approach your peers and work then we encourage you to apply.