Research Nurse (Childhood cancer and blood disorders)
Research Nurse (Childhood cancer and blood disorders)
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Job Description
The University Hospital Vall dHebron is highly specialized in rare diseases on a Regional national and international level with its incorporation as full member of 20 of the 24 European Reference Networks (ERN).
The scientific direction of the ERNEuroBloodNet the ERN dedicated to Rare Hematological Diseases (RHD) is led by Dr Ma Pereira head of the Rare Anemia Disorders research lab within the Cancer y enfermedades hematologicas infantiles group.
Our research strategy is focused on the development and validation of innovative methodological approaches for better characterization of patients affected by rare anemia disorders according to their individual features to allow personal risk profiles and personalized medicine.
In this context we are seeking a highly motivated and dedicated Research Nurse to join our team. This role involves participation as study coordinator and clinical researcher in various national and european projects related to clinical and multiomics research including ERDERA (European Rare Diseases Research Alliance) funded by the European Union under the Horizon Europe Programme. Potential to pursue a Ph.D. within the research program.
The primary focus of this position will be on designing collecting and analyzing PatientReported Outcome Measures (PROMs) in Sickle cell disease.
The role requires close collaboration with multiple stakeholders including clinicians researchers and patient representatives.
Funding: Instituto de Salud Carlos III (ISCIII) FORT23/00034
Education and qualifications:
Required:
- Registered Nurse qualification with licensure to practice.
- Bachelors degree in Nursing.
- Fluent (written and spoken) English and Spanish.
Desired:
- Knowledge of ethical and regulatory frameworks governing clinical research
- Masters degree
Experience and knowledge:
Required:
- Experience/ knowledge in clinical research.
- Interest in rare diseases and patientcentered research.
- Ability to work under tight deadlines and manage multiple projects simultaneously while maintaining high accuracy and attention to detail.
- Ability to work independently and collaboratively in a research setting.
- Excellent communication skills and ability to work in a multidisciplinary team.
Desired:
- Experience with PROMs and/or patient engagement strategies.
- Experience in clinical trials as expert nurse or study coordinator.
- Experience/knowledge in participating in EUfunded projects (notions of what is a work package a deliverable a milestone...).
- Strong organizational and project management abilities.
Main responsibilities and duties:
- Data collection & management: you will be responsible for pediatric and adult patients enrollment in the Study protocol collecting and managing clinical data including PatientReported Outcome Measures (PROMs).
- Documentation & Reporting: Maintain uptodate project documentation including protocols progress reports and meeting minutes. Prepare and distribute deliverables summaries and presentations as needed.
- Meeting Participation & Coordination: Organize and facilitate regular project meetings including scheduling preparing agendas minutes and proposing and following up on action items.
- Patient engagement: you will be responsible for establishing and maintaining collaborations with patient representatives advocacy groups and associations to foster enhanced patient engagement in research.
Labour conditions:
- Fulltime position: 40h/week
- Starting date: immediate.
- Gross annual salary: Remuneration will depend on experience and skills. (Salary ranges are consistent with our Collective Agreement pay scale).
- Contract: Technical and scientific activities contract linked to the project activities
What can we offer
- Incorporation to Vall dHebron Research Institute (VHIR) a public sector institution that promotes and develops the biomedical research innovation and teaching at Vall dHebron University Hospital (HUVH) the biggest hospital of Barcelona and the largest of Catalan Institute of Health (ICS).
- A scientific environment of excellence highly dynamic where highend biomedical projects are continuously developed.
- Continuous learning and a wide range of responsibilities within a stimulating work environment.
- Individual training opportunities.
- Flexible working hours.
- 23 days of holidays 9 personal days.
- Flexible Remuneration Program (including dining checks health insurance transportation and more)
- Corporate Benefits: platform through which you can obtain significant discounts on travel culture technology gastronomy sports... among many others.
- Healthy Offering: choose from a variety of wellbeing focused activities to be the healthiest you.
Deadline to apply:
VHIR embraces Equality and Diversity. As reflected in our values we work toward ensuring inclusion and equal opportunity in recruitment hiring training and management for all staff within the organization regardless of gender civil status family status sexual orientation gender identity and expression religion age functional diversity or ethnicity.
Employment Type
Full Time
