VP of Data Intelligence Technology

TITLE: Vice President Data Intelligence & Technology (Product Platform IT Analytics Systems)

DEPARTMENT:Data Intelligence & Technology

LOCATION:Washington DC Remote / Hybrid

POSITION TYPE: FullTime Exempt

REPORTS TO:Chief Data & Analytics Officer / Chief Technology Officer (CTO)

COMPENSATION: $155000$166000 annual salary; Healthcare benefits are available for this role.

ORGANIZATION OVERVIEW:

The Colorectal Cancer Alliance is a national nonprofit organization committed to ending colorectal cancer within our lifetime. We help patients families survivors and caregivers navigate diagnosis and treatment options connect them with those who can share experiences and knowledge and identify resources to meet their needs. We partner with healthcare professionals and social influencers to raise awareness of preventative screening and we collaborate with researchers to better understand the disease and fund critical research. Our efforts are urgent effective and efficient because we believe that tomorrow cant wait.

The Colorectal Cancer Alliance (The Alliance) is committed to transforming colorectal cancer research patient advocacy and precision medicine through datadriven solutions and technology innovation. Our ecosystemincluding BlueHQ (patient engagement platform) BlueLake (realworld data hub) and KSPY (clinical trials enablement platform)enables patient navigation realworld evidence (RWE) generation and research acceleration through advanced data governance interoperability analytics and cloudbased platforms.

As we scale we seek a Vice President of Data Intelligence & Technology to lead integrate and unify our technology research and data strategies. This leader will drive data governance security privacy engineering analytics and IT infrastructureensuring compliance scalability and missiondriven innovation that supports patients caregivers researchers and pharmaceutical partners.

POSITION OVERVIEW

The Vice President Data Intelligence & Technology (DI&T) will lead the Colorectal Cancer Alliances datacentric technology and analytics strategybridging patient engagement research data interoperability and clinical trial innovation. This role will oversee:

• Technology Strategy & Systems Architecture Drive the evolution of data systems integrations and product infrastructure to support patient navigation care and research.
• Data Governance Security & Compliance Ensure adherence to HIPAA GDPR 21 CFR Part 11 HITRUST and implement privacy security and AI ethics frameworks.
• Product & Platform Leadership Develop interoperable APIled platforms using FHIR/HL7 and similar standards for realworld evidence (RWE) and research enablement.
• Analytics & Research Enablement Oversee analyticsdriven patient navigation predictive analytics and realworld data insights to support clinical trials and precision medicine.
• IT & Cloud Infrastructure Optimize AWS MuleSoft Salesforce and dbt for scalability security and operational efficiency.
• Support Development & Fundraising Enhance donor engagement campaign analytics and fundraising strategies by integrating Salesforce Nonprofit Cloud and predictive insights.
• Support Finance & Business Intelligence Strengthen financial analytics reporting automation and ROI tracking to support grant management and investment decisions.
• Support Marketing & Communications Leverage data analytics and audience insights to drive engagement outreach effectiveness and mission impact.

This role requires a visionary leader who can align data technology research and nonprofit strategy while ensuring scalability security and missiondriven innovation across all organizational functions.

KEY RESPONSIBILITIES

Data & Technology Leadership

• Oversee the strategy development and integration of the Alliances data platforms including:
  • BlueHQ 2.0 (Patient PRM & Engagement Platform)
  • BlueLake (RealWorld Data & Unified Research Hub)
  • KSPY (Adaptive Clinical Trials Medicine Platform)
• Platform/Integration Engineering Architect and implement a FHIR APIfirst and cloudnative technology stack to enable scalable interoperable data exchange.
• Lead crossfunctional members/teams across Data Engineering IT Product Analytics and Research Enablement.
• Fulfill the data and technology strategic roadmap aligning product engineering and analytics teams with our mission.
• Operationalizing structured software development life cycle (SDLC) processes for developing testing deploying and maintaining systems to ensure highquality security and scalability while meeting business and technical requirements.
• Operationalizing DevOps for integrated software development and IT operations to improve the speed efficiency and reliability of system releases including automation continuous integration and deployment (CI/CD) to reduce risk and enhance scalability.

Data Governance Compliance & Security

• Establish a data governance framework ensuring compliance with HIPAA GDPR 21 CFR Part 11 HITRUST.
• Implement enterprisegrade security practices including rolebased access control (RBAC) encryption and secure API integrations.
• Support patient consent models AI governance strategies and ethical datasharing policies.
• Support a common data model & taxonomy for patient registries realworld data (RWD) and research datasets.
• Support metadata governance across BlueHQ KSPY and external research partners.
• Support automated proactive data quality monitoring and resolution (validation rules thresholds alerts); and reactive data observability (anomaly detection monitoring dependencies lineage tracing).

Research & Clinical Trial Enablement

• Develop realworld evidence (RWE) data strategies to support pharmaceutical biotech and research collaborations.
• Oversee FHIR HL7 and AWS HealthLake integrations to enable longitudinal patient tracking and research insights.
• Lead the evolution of Electronic Data Capture (EDC) & RealWorld Data (RWD) infrastructure ensuring seamless clinical trial data ingestion staging and analytics (e.g. REDCap Case Report Forms).
• Ensure that research data is structured scalable and regulatorycompliant for precision oncology treatment efficacy studies and novel biomarker discovery.

AI Analytics & Predictive Modeling

• Oversee the implementation of AIdriven patient navigation risk modeling and clinical trial recruitment algorithms.
• Implement predictive analytics models for early risk detection and patient stratification.
• Standardize data pipelines analytics environments and governance policies across the organization.

IT & Security Infrastructure

• Scale the Alliances cloud infrastructure (AWS MuleSoft Salesforce) to handle sensitive patient and research data securely.
• Establish SOC2compliant IT cybersecurity with continuous monitoring anomaly detection and compliance auditing.
• Drive cost optimization scalability and performance monitoring across IT and cloud platforms.
• Maintain secure API authentication policies (OAuth JWT rolebased access).

REQUIRED QUALIFICATIONS

Technical & Data Strategy

• Strong demonstrated comprehension and expertise in Enterprise Data Architecture with experience designing and codifying scalable decentralized data ecosystems.
• Strong background in cloud & infrastructure management particularly with AWS (IAM S3 RDS OLAP SageMaker HealthLake) MuleSoft Salesforce and dbt.
• Knowledge of FHIR HL7 REDCap and interoperability standards for research and clinical trials.
• Handson experience in API and platform engineering including building secure APIdriven integrations for RWE patient data and analytics platforms.

Leadership &

• Minimum of 12 years in data technology or platform leadership ideally within healthcare nonprofits life sciences or biotech research organizations.
• Proven ability to lead crossfunctional teams across product engineering analytics AI compliance and security.
• Strong balance of technical expertise and strategic to drive missiondriven innovation.

Compliance & Regulatory Expertise

• Deep understanding of HIPAA GDPR 21 CFR Part 11 HITRUST and data governance best practices.
• Experience implementing compliance frameworks in clinical trials RWE and patient data ecosystems.
  

Research & Clinical Trial Enablement

• Experience supporting pharmaceutical partnerships clinical research and precision oncology initiatives.
• Strong background in managing complianceheavy data ecosystems the lifecycles and ensuring research integrity.

Preferred Qualifications

• Experience in nonprofit patient advocacy or missiondriven research initiatives.
• Prior leadership experience in a highgrowth research organization hospital research network or biotech setting.
• Expertise in advanced analytics risk modeling trial matching and precision oncology.

STATEMENT OF NONDISCRIMINATION: The Colorectal Cancer Alliance does not discriminate on the basis of race color gender disability age religion sexual orientation nationality or ethnicity. We are strongly committed to hiring a diverse and multicultural staff and encourage applications from all backgrounds.

HOW TO APPLY:To apply please complete the application in our ADP Workforce Now application portal.

To see all employment opportunities at the Alliance please click here to be directed to our careers site.

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