Director Patient Advocacy
Director Patient Advocacy
Employer Active
Job Alert
You will be updated with latest job alerts via email
Share
Job Alert
You will be updated with latest job alerts via email
$ 220600 - 272500
1 Vacancy
Job Description
Position Summary:
ultradedicated Your biggest challenges yield rare possibilities
Reporting to Executive Director Patient Advocacy the Director will be responsible for leading patient advocacy and engagement for multiple assets that will drive global awareness support regulatory program and launch readiness strategies and embed the patient and caregiver voice into Ultragenyx from discovery to commercialization. The incumbent will work crossfunctionally with Corporate Affairs Program Teams Medical Affairs Clinical Development / Operations Commercial Legal Compliance & Regulatory.
Work Model:
Flex: This role will typically require onsite work 23 days each week or more depending on business needs. In many locations the business will set certain days each week that Flex employees are required to be onsite.
Responsibilities:
- Develop and execute global patient advocacy strategy across different stages of asset development in key markets for Ultragenyx
- Implement strategies to drive disease awareness clinical trial awareness and support important regulatory milestones
- Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance
- Develop Caregiver Leadership Councils and other forums to support corporate objectives and understand community unmet needs
- Identify opportunities and build strategic solutions and initiatives to address internal and external challenges
- Manage patient advocacy events and engage employees to advocate for the patient voice and experience
- Represent Ultragenyx at scientific conferences and forums to support partnerships and outcomes for patients
- Lead and execute communications plan with patient advocacy organizations including the development of community letters company updates and presentation materials
- Build and maintain Patient Advocacy annual plan and budget in alignment with crossfunctional colleagues
- Ensure compliant ethical and transparent stakeholder engagement and communication
Requirements:
- 8years of industry experience and 5 years of external engagement experience
- Excellent communications skills (including written and oral) and strong interpersonal skills that can build and progress relationships internally as well as externally
- Experience developing and managing annualized patient advocacy plans and budgets
- Solid understanding of drug development regulatory and commercial processes at a global level
- Knowledge of Legal Regulatory & Compliance guidelines for engaging patient advocacy communities
- Experience developing and executing patient advocacy strategy with tangible results that align corporate goals with community unmet needs. #LIDNI
The typical annual salary range for this fulltime position is listed below. This range reflects the characteristics of the job such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicants geographic location.
This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.
Pay Range
$220600 $272500 USD
Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race color religion gender sexual orientation gender identity/expression national origin/ancestry age disability marital and veteran status and any other status or classification protected by applicable federal state and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law including individuals with disabilities disabled veterans for pregnancy childbirth and related medical conditions and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application or in any part of the recruitment process you may contact Talent Acquisition by emailing us at .
It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.
Required Experience:
Director
Employment Type
Full Time
